Extremely Premature Infants: practice recommendations for facilitating the shared decision making process with parent(s) and the early care of the infant(s)
Decision Aid – Cards & Decision Aid – Cards French
The use of a decision aid or parent information handout to facilitate the comprehension and involvement of parents in the shared decision making process is strongly encouraged
Decision Aid – Accompanying Script [new version to come in November 2020]
The script provides tips regarding the use of the Decision Aid and ideas for how to frame the related information when facilitating shared decision making with parent(s) facing premature delivery at 22-25 weeks GA
Statistical Cheat Sheets
Babies born at 22 to 25 weeks gestational age
Babies born at 26+ weeks gestational age
Parent Handouts
Babies born at 22 weeks gestational age (Digital Booklet | Printable Booklet | Printable Booklet French)
Babies born at 23 weeks gestational age (Digital Booklet| Printable Booklet | Printable Booklet French)
Babies born at 24 weeks gestational age (Digital Booklet | Printable Booklet | Printable Booklet French)
Babies born at 25 weeks gestational age (Digital Booklet | Printable Booklet | Printable Booklet French)
Publications by our research team (available by PubMed or contact author)
Daboval T, Moore GP, Ferretti E. How we teach ethics and communication during a Canadian Neonatal Perinatal Medicine Residency: an interactive experience. Medical Teacher 2013;35(3):194-200.
Moore GP, Lemyre B, Barrowman N, Daboval T. Neurodevelopmental outcomes at 4-8 years of children born at 22-25 weeks gestational age: a meta-analysis. JAMA Pediatrics 2013;167(10):967-74
Daboval T, Ferretti E, Rohde K, Muirhead P, Moore GP. Neonatal Ethics Teaching Program – Scenario Oriented Learning in Ethics: Antenatal Consultation at the Limit of Viability. MedEdPORTAL Publications 2015. No PMID. Available from: https://www.mededportal.org/publication/10043 http://dx.doi.org/10.15766/mep_2374-8265.10043
Binepal N, Lemyre B, Dunn S, Daboval T, Aglipay M, Leduc S, Moore GP. Quality appraisal of international guidelines on perinatal care of extremely premature infants. Current Pediatric Reviews 2015;11(2):126-134.
Lemyre B, Dunn S, Daboval T, Kekewich M, Jones G, Wang D, Mason-Ward M, Moore GP. Shared decision making for infants born at the threshold of viability: a prognosis-based guideline. J Perinatol 2016;36(7):503-9.
Lemyre B, Dunn S, Daboval T, Kekewich M, Jones G, Wang D, Mason-Ward M, Moore GP. Response to “Frameworks are pretty on paper but don’t fit reality” [Letter to the editor]. J Perinatol 2016;36:1140 (PMID 28548117 with incomplete authors) with authorship correction in J Perinatol 2017;37(6):747. doi:10.1038/jp.2017.47.
Lemyre B, Moore GP; Canadian Paediatric Society Fetus and Newborn Committee. Counseling and management for anticipated extremely preterm birth: CPS Statement. Paediatrics and Child Health 2017;22(6):334-341.
Moore GP, Daboval T, Moore-Hepburn C, Lemyre B. ‘Counseling and management for anticipated extremely preterm birth’: informing CPS statements through national consultation. Paediatrics and Child Health 2017;22(6):330-333. doi: 10.1093/pch/pxx030. No PMID.
Moore GP, Lemyre B, Daboval T, Ding S, Dunn S, Akiki S, Barrowman N, Shephard A, Lawson M. Field testing of decision coaching with a decision aid for parents facing extreme prematurity. J Perinatol 2017;37(6):728-34.
Doucette S, Lemyre B, Daboval T, Dunn S, Akiki S, Barrowman N, Moore GP. Effect of an educational presentation about extremely preterm infants on knowledge and attitudes of healthcare providers. Am J Perinat 2017;34(10):982-989.
Kharrat A, Moore GP, Beckett S, Nicholls S, Sampson M, Daboval T. Antenatal consultations at extreme prematurity: a systematic review of parent communication needs. J Pediatrics 2018;196:109-115.e7. doi: 10.1016/j.jpeds.2017.10.067
Barker C, Dunn S, Moore GP, Reszel J, Lemyre B, Daboval T. Shared decision making during antenatal counselling for anticipated extremely preterm birth. Paed Child Health 2019;24(4):240-249.
Moore GP, Reszel J, Daboval T, Lemyre B, Barker C, Dunn S. Qualitative evaluation of a guideline supporting shared decision making for extreme preterm birth. Journal of Maternal-Fetal and Neonatal Medicine 2018; doi: 10.1080/14767058.2018.1512575. [Epub ahead of print].
Ding S, Daboval T, Lemyre B, Barrowman N, Moore GP. Meta-analysis of neurodevelopmental outcomes at 4-10 years of age in children born at 22-25 weeks gestational age: an update. Acta Paediatrica 2019; 108(7):1237-1244.
Ding S, Mew EJ, Chee-a-tow A, Offringa M, Butcher NJ, Moore GP. Neurodevelopmental outcome descriptions in cohorts of extremely preterm children. Accepted by Arch Dis Child Fetal Neonatal Ed 2020 Jan 13:fetalneonatal-2019-318144. doi: 10.1136/archdischild-2019-318144.
Haward MF, Janvier A, Moore GP, Laventhal N, Fry JT, Lantos J. Should extremely premature babies get ventilators during the COVID-19 crisis? Am J Bioeth 2020;20(7):37-43.
Mardian E, Bucking S, Dunn S, Lemyre B, Daboval T Moore GP. Evaluating parental perceptions of written handbooks provided during shared decision making with parents anticipating extremely preterm birth. J Matern Fetal Neonatal Med 2020 Jul 29:1-8. doi: 10.1080/14767058.2020.1797671.
